ABOUT US
Beau Dunn
Beau Dunn is the official Spokeswomen and Founder of Cure Lipedema. Diagnosed in early 2011, she quickly became advocate for finding a cure for Lipedema while also spreading awareness.
www.BeauDunn.com
www.twitter.com/BeauDunn
www.Facebook.com/BeauDunn
Dr. Karen Herbst
I am a board certified Endocrinologist by training and have always been interested in fat - why do daughters have fat just where their mothers do, and why do men develop large abdomens and skinny arms and legs as they age. While training at the University of Washington in Seattle, I was introduced to patients with familial partial lipodystrophy and Madelung's disease (multiple symmetric lipomatosis; MSL). I was fortunate to work with one patient with MSL in Los Angeles and have come to know more as I continue working in San Diego. While conversing with the owner of the "About Madelung's Disease" website, she told me to look into Dercum's Disease. Finding out about lipedema was next. Since that time, I have seen many people with Dercum's disease, familial multiple lipomatosis (FML), Madelung's disease and lipedema (and lipo-lymphedema) from all over the world. While much research remains unpublished, I want to share my understanding of these disorders and provide suggestions for treatment so that you and your healthcare provider can help you live a better life.
I wish you health and pain-free days.
SIncerely,
Karen L. Herbst, PhD, MD
Consultations or Questions: 858-484-2543
MISSION STATEMENT
Cure Lipedema & FDRS Mission Statement
The Fat Disorders Research Society, Inc. exists to raise funds to promote research, increase public awareness, and provide information and resources for individuals with fat disorders most specifically Lipedema.
Short and Long Term Goals:
Raise funds to support research aimed at developing universal diagnostic techniques, effective affordable treatment, and ideally, a cure.
Establish publishable “standards of care” for the management of patients with fat disorders
Identify medical facilities and doctors with experience in the diagnosis and treatment of fat disorders
Advocate at the local and national levels for appropriate funding and recognition for orphan diseases, including fat disorders
Create working alliances with other individual fat disorder non-profit organizations to achieve mutual goals
Long-Range Strategies:
Develop and maintain a patient data base to establish incidence, prevalence and diagnostic picture of the various fat disorders
Host or sponsor scientific meetings and professional seminars for interested physicians, scientists, and medical groups
Provide access to current information about research, diagnosis and treatment for patients and clinicians through our website
Award grant monies for research into fat disorders
Los Angeles, CA USA
San Deigo, CA USA
New York, NY USA
Auckland, New Zealand
OUR BRANCHES